(e-mail from S. Moore)
Today Dr. Parra told us that Sabina's injuries were very severe and he does not expect her to recover from her current state.
Saturday, April 28, 2007
Birthday Morning, April 19
(e-mail from B. Parady)
Now she is 24. She got through the night with one fever spike at 6am and just had one as we came in. She was wide awake when we came in and slightly feverish.
They have her on EEG and looking at how all of these episodes are triggered. This will take more research and science to resolve her condition.
I am thankful to be with her and able to do what I can for her care. My prayers for Sabina on her birthday.
Now she is 24. She got through the night with one fever spike at 6am and just had one as we came in. She was wide awake when we came in and slightly feverish.
They have her on EEG and looking at how all of these episodes are triggered. This will take more research and science to resolve her condition.
I am thankful to be with her and able to do what I can for her care. My prayers for Sabina on her birthday.
Evening, April 18
(e-mail from B. Parady)
A new time, a new place.
I am stunned at the modernity of Columbia Presbyterian. The neuro ICU ward here is second to none. Sabina has found her home for the next couple of weeks.
It is the little things that matter. First they are all computerized. No one messes with paper. All drugs are accessible, not air tubes from pharmacy. Her room is tidy and has not mold or dust near the patient. The professionalism is at the highest level whether physicians, nurses, or healthcare staff. Her bed shakes to reduce bedsores. They came in an percussed her lungs, something was never seen at SVH. Sounded like a massage at a spa. Should be good to clear the passages and lungs.
Her condition was basically sedated because of all the activity. They are using what I consider to be Sabina's prize sedative, Fentanyl. This was the sedative used when she got to the point of following commands. Clearly she has been in a lot of pain, and the source of it needs attention. I do get the feeling that we are going to get somewhere with her in this setting.
At any rate, my current prayers have been answered, now for new prayers. Time for Sabina to get diagnosis and prognosis, and Godspeed her rehabilitation.
A new time, a new place.
I am stunned at the modernity of Columbia Presbyterian. The neuro ICU ward here is second to none. Sabina has found her home for the next couple of weeks.
It is the little things that matter. First they are all computerized. No one messes with paper. All drugs are accessible, not air tubes from pharmacy. Her room is tidy and has not mold or dust near the patient. The professionalism is at the highest level whether physicians, nurses, or healthcare staff. Her bed shakes to reduce bedsores. They came in an percussed her lungs, something was never seen at SVH. Sounded like a massage at a spa. Should be good to clear the passages and lungs.
Her condition was basically sedated because of all the activity. They are using what I consider to be Sabina's prize sedative, Fentanyl. This was the sedative used when she got to the point of following commands. Clearly she has been in a lot of pain, and the source of it needs attention. I do get the feeling that we are going to get somewhere with her in this setting.
At any rate, my current prayers have been answered, now for new prayers. Time for Sabina to get diagnosis and prognosis, and Godspeed her rehabilitation.
Evening, April 17 (Extra Report)
(e-mail from B. Parady)
Well, it was close. A trauma patient moved in just as the transfer was to take place.
So one window closes for today, and we begin again tomorrow with hope that the transfer happens in due course. What was I saying about this all being a roller-coaster.
So Sabina had a good day. She was drying out from all the heavy drugs used Sunday night to stanch her spike. She held her temp at 98.6 all day till evening. It began to spike but the Arctic Sun stanched it and she was left under machine control with excellent vitals.
Tomorrow the anticipation begins again. Pray for no more trauma patients at NYP Columbia.
Well, it was close. A trauma patient moved in just as the transfer was to take place.
So one window closes for today, and we begin again tomorrow with hope that the transfer happens in due course. What was I saying about this all being a roller-coaster.
So Sabina had a good day. She was drying out from all the heavy drugs used Sunday night to stanch her spike. She held her temp at 98.6 all day till evening. It began to spike but the Arctic Sun stanched it and she was left under machine control with excellent vitals.
Tomorrow the anticipation begins again. Pray for no more trauma patients at NYP Columbia.
Evening, April 17
(e-mail from B. Parady)
A couple days early for Sabina's birthday present. She is on her way to NY Presbyterian, Columbia University. Attending will be Dr Augusto Parra.
Transport ambulance has been arranged.
She had a good stable day. Temps steady.
Prayers have been answered, now we need to pray for the resolution of her spiking fevers, which I hope will be coming soon.
A couple days early for Sabina's birthday present. She is on her way to NY Presbyterian, Columbia University. Attending will be Dr Augusto Parra.
Transport ambulance has been arranged.
She had a good stable day. Temps steady.
Prayers have been answered, now we need to pray for the resolution of her spiking fevers, which I hope will be coming soon.
Evening, April 16
(e-mail from B. Parady)
An uneventful day fortunately. We kept the Artic Sun at 98.6 all day. The heavy drugs the night before took their toll and left Sabina exhausted and stunned looking most of the day. We are leaving the Arctic Sun on overnight.
They took a 24 hour EEG prior to transferring her. Indications are that transfer is imminent. We look forward to finally having a plan and diagnosis for the spiking fevers. This is long overdue.
Shelly and I are now Sabina's legal guardians and all that entails.
Our prayers go to Sabina's resolution of the fevers and how they will be managed.
An uneventful day fortunately. We kept the Artic Sun at 98.6 all day. The heavy drugs the night before took their toll and left Sabina exhausted and stunned looking most of the day. We are leaving the Arctic Sun on overnight.
They took a 24 hour EEG prior to transferring her. Indications are that transfer is imminent. We look forward to finally having a plan and diagnosis for the spiking fevers. This is long overdue.
Shelly and I are now Sabina's legal guardians and all that entails.
Our prayers go to Sabina's resolution of the fevers and how they will be managed.
Evening, April 14
(e-mail from B. Parady)
Well it was a good day today. A little bit of a fever early, taken care of largely by the Arctic Sun. She had a high degree of open eyes and recognition, coming back from her setback. Kat and Cathy came by which Sabina seemed to enjoy. At the end of the day the fever seemed to want to come back, but was being held in check as we left.
We are encouraged that we can get her into acute rehab, presuming a bed becomes available, here in NYC.
So little progress, and we hope and pray that we can take the next steps in her rehabilitation in the coming week.
Well it was a good day today. A little bit of a fever early, taken care of largely by the Arctic Sun. She had a high degree of open eyes and recognition, coming back from her setback. Kat and Cathy came by which Sabina seemed to enjoy. At the end of the day the fever seemed to want to come back, but was being held in check as we left.
We are encouraged that we can get her into acute rehab, presuming a bed becomes available, here in NYC.
So little progress, and we hope and pray that we can take the next steps in her rehabilitation in the coming week.
Evening, April 13
(e-mail from B. Parady)
Well, I am back in town till Wednesday. Here is the log for the day.
Her agitation threshold has lowered. Becomes uncomfortable very easily. She was very alert all day. Did not respond to commands. Seems to be distracted by the pain. Is becoming used to narcotics. It takes a lot to give her pain relief. Remembering that when she did respond to commands a couple of weeks ago, the pain relief was effective at that time. Other medications may be in order to bring her forward.
Well, I am back in town till Wednesday. Here is the log for the day.
Her agitation threshold has lowered. Becomes uncomfortable very easily. She was very alert all day. Did not respond to commands. Seems to be distracted by the pain. Is becoming used to narcotics. It takes a lot to give her pain relief. Remembering that when she did respond to commands a couple of weeks ago, the pain relief was effective at that time. Other medications may be in order to bring her forward.
Evening, April 12
(e-mail from B. Parady)
Little to report today. One fever spike. Got a diagnosis from a physician that Sabina's spikes are likely due to venous thromboses. Another black mark for SVH in that they have not been effective in dealing with the fever spikes. Sabina was tired after the episode.
Had some good visitors today. I will be travelling tomorrow and will arrive late.
Let's pray for Sabina and the doctors that they work out a method of treatment and deal with the bedsores.
Little to report today. One fever spike. Got a diagnosis from a physician that Sabina's spikes are likely due to venous thromboses. Another black mark for SVH in that they have not been effective in dealing with the fever spikes. Sabina was tired after the episode.
Had some good visitors today. I will be travelling tomorrow and will arrive late.
Let's pray for Sabina and the doctors that they work out a method of treatment and deal with the bedsores.
Evening, April 11
(e-mail from B. Parady)
Few things to report. Sabina had some rough periods with fever. She does have two bedsores. Had lots of visitors from Apostles today which was nice. All in all an OK day.
We are looking to transfer her at the earliest opportunity. Still working on it.
Let's pray for healing and good care for the next few days.
Few things to report. Sabina had some rough periods with fever. She does have two bedsores. Had lots of visitors from Apostles today which was nice. All in all an OK day.
We are looking to transfer her at the earliest opportunity. Still working on it.
Let's pray for healing and good care for the next few days.
Evening, April 9
(e-mail from B. Parady)
Fairly good day, fevers were contained. Sabina seems to be recovering from infections. She was getting more active toward the end of the day with her moving her leg.
Sabina seemed to be getting more agitated which is in the next phase of recovery. Sedation was used to manage the agitation. Shelly plans on inquiring about the use of the helmet.
All in all, favorable. What we pray for, little miracles every day.
Fairly good day, fevers were contained. Sabina seems to be recovering from infections. She was getting more active toward the end of the day with her moving her leg.
Sabina seemed to be getting more agitated which is in the next phase of recovery. Sedation was used to manage the agitation. Shelly plans on inquiring about the use of the helmet.
All in all, favorable. What we pray for, little miracles every day.
Evening, April 9
(e-mail from B. Parady)
It was a good day. Sabina had no fever during the day, but had one last night but only 101. The septicemia seems to be abating under the pressure of the antibiotics. She was alert, showed expression. Later in the evening she grimaced but it turns out it was only a tummy ache and not the onset of fever or headache.
She talked to Hirschfeld about the bone flap and that hospitals do not generally accept them if transferred. Sabina would need to be clear of the septicemia and free of fever for a week before the bone flap could go back in. Other place use artificial substitutes, which I confess after the infection control record of St Vincents makes me wonder if that is not a bad idea.
So a happy Easter for Sabina. Our prayers for the little daily miracles.
It was a good day. Sabina had no fever during the day, but had one last night but only 101. The septicemia seems to be abating under the pressure of the antibiotics. She was alert, showed expression. Later in the evening she grimaced but it turns out it was only a tummy ache and not the onset of fever or headache.
She talked to Hirschfeld about the bone flap and that hospitals do not generally accept them if transferred. Sabina would need to be clear of the septicemia and free of fever for a week before the bone flap could go back in. Other place use artificial substitutes, which I confess after the infection control record of St Vincents makes me wonder if that is not a bad idea.
So a happy Easter for Sabina. Our prayers for the little daily miracles.
Evening, April 7
(e-mail from B. Parady)
An uneventful day. No need for narcotics. She slept a lot clearly recovering. She got frisky at night, and the fever started a bit and was addressed by antidiaphoretics.
She is on 4 antibiotics to address her blood infection.
My thanks to Kenny who stopped by to give Shelly some time off.
Here are my prayers for a wonderful Easter for Sabina and continued recovery. Let hope
resound.
An uneventful day. No need for narcotics. She slept a lot clearly recovering. She got frisky at night, and the fever started a bit and was addressed by antidiaphoretics.
She is on 4 antibiotics to address her blood infection.
My thanks to Kenny who stopped by to give Shelly some time off.
Here are my prayers for a wonderful Easter for Sabina and continued recovery. Let hope
resound.
Evening, April 6
(e-mail from B. Parady)
An OK day on this Good Friday. Some minor fever spiking because Sabina has a blood infection that is being treated with antibiotic. The good nursing team has been on it right away with dilaudid and motrin and the Arctic Sun. So things never got out of hand.
Some friends have been by today which were welcome breaks for Shelly.
There was some neuro activity on Sabina's part showing emotion and attention. Shelly does feel that when the blood infection clears we will get some more attention back and more out of coma activity.
So it goes. I will be back in NYC briefly late next week, returning early the following week.
My continued prayers for a just another miracle, the miracle of everyday recovery, just a little bit.
An OK day on this Good Friday. Some minor fever spiking because Sabina has a blood infection that is being treated with antibiotic. The good nursing team has been on it right away with dilaudid and motrin and the Arctic Sun. So things never got out of hand.
Some friends have been by today which were welcome breaks for Shelly.
There was some neuro activity on Sabina's part showing emotion and attention. Shelly does feel that when the blood infection clears we will get some more attention back and more out of coma activity.
So it goes. I will be back in NYC briefly late next week, returning early the following week.
My continued prayers for a just another miracle, the miracle of everyday recovery, just a little bit.
Evening, April 5
(e-mail from B. Parady)
Steady day today. Recovery and she is fairly medicated for her fever. She has some sort of blood infection or can be traced by markers in the blood and the docs are are working to stanch it. She was tense but no major issues.
The night nurse is proactive and makes Shelly happy. Neurologically, she is back in coma, but with eyes open occasionally. Shelly feels that Sabina will come back after the infections are treated.
Mom is brushing her teeth, and massaging her calves. Working to deal with issues before they become an issue.
Kenny and JR came by for a visit which was much appreciated. Gave Shelly a break.
My prayers for her recovery and health and comfort.
Steady day today. Recovery and she is fairly medicated for her fever. She has some sort of blood infection or can be traced by markers in the blood and the docs are are working to stanch it. She was tense but no major issues.
The night nurse is proactive and makes Shelly happy. Neurologically, she is back in coma, but with eyes open occasionally. Shelly feels that Sabina will come back after the infections are treated.
Mom is brushing her teeth, and massaging her calves. Working to deal with issues before they become an issue.
Kenny and JR came by for a visit which was much appreciated. Gave Shelly a break.
My prayers for her recovery and health and comfort.
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