Evening, June 14

(e-mail from B. Parady)

So far a fairly constant day. She had a storm that was suppressed with sedative. She has been comfortable almost all day. The one storm that she had was caused by too much activity from the therapist. She appeared even under sedation, to be reactive.

Hope is still alive. This article was found that dispels the notion that storms are a final prognosis. Katelyn starts out having leukemia, but it really is about operation induced storms from brain surgery:

http://www.stjude.org/leukemia/0,2530,422_2282_9247,00.html.

I am asking the doctors to review the literature on the baclofen pump to see if we can apply it to Sabina's condition. The pump has been used to stop storms on onset.

Shelly and I have started to look at long-term therapy such as Kentfield in Marin county, California.

So my prayers are for Sabina's recovery and persistence in treatment, and for faith and hope.